{"id":14288,"date":"2014-09-09T12:26:49","date_gmt":"2014-09-09T17:26:49","guid":{"rendered":"http:\/\/www.momstoolbox.com\/blog\/?p=14288"},"modified":"2014-09-09T12:26:49","modified_gmt":"2014-09-09T17:26:49","slug":"slugs-bugs-benefit-justins-triumph-gan-hannahs-hope-fund","status":"publish","type":"post","link":"http:\/\/www.momstoolbox.com\/blog\/slugs-bugs-benefit-justins-triumph-gan-hannahs-hope-fund\/","title":{"rendered":"Slugs &#038; Bugs to benefit Justin\u2019s TRIumph Over GAN &#038; Hannah\u2019s Hope Fund"},"content":{"rendered":"<p><a href=\"http:\/\/www.momstoolbox.com\/blog\/wp-content\/uploads\/2014\/09\/slugs_bugs_edited-1.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"size-full wp-image-14290 aligncenter\" src=\"http:\/\/www.momstoolbox.com\/blog\/wp-content\/uploads\/2014\/09\/slugs_bugs_edited-1.jpg\" alt=\"slugs_bugs_edited-1\" width=\"350\" height=\"541\" srcset=\"http:\/\/www.momstoolbox.com\/blog\/wp-content\/uploads\/2014\/09\/slugs_bugs_edited-1.jpg 350w, http:\/\/www.momstoolbox.com\/blog\/wp-content\/uploads\/2014\/09\/slugs_bugs_edited-1-194x300.jpg 194w\" sizes=\"auto, (max-width: 350px) 100vw, 350px\" \/><\/a><\/p>\n<p>Can you imagine what it would be like if your child was suffering from a rare <span style=\"color: #222222;\">rare, fatal genetic disorder\u00a0and there\u00a0<\/span>wasn&#8217;t any federal funding to help find a solution?<\/p>\n<p>Houston kids <a href=\"http:\/\/www.justinstriumph.org\/\" target=\"_blank\">Justin and Lexi Clark and their family are facing that battle<\/a>. Both have been diagnosed with\u00a0<span style=\"color: #222222;\">Giant Axonal Neuropathy (GAN), which affects\u00a0only 50-70 children worldwide. Justin was having trouble walking straight and was falling down, which led to his diagnosis. Lexi was diagnosed soon after Justin.<\/span><\/p>\n<p><span style=\"color: #222222;\">Justin&#8217;s twin brother, Jared, does not have the disorder, so he\u00a0participates in triathlons and other fundraising events in his brother and sister&#8217;s honor.<\/span><\/p>\n<p><strong><span style=\"color: #222222;\">On\u00a0<\/span><span class=\"aBn\" style=\"color: #222222;\" tabindex=\"0\" data-term=\"goog_559743003\"><span class=\"aQJ\">Friday, September 19th<\/span><\/span><span style=\"color: #222222;\">, you can help this family, and all kids with GAN, all while taking in a concert perfect for pre-schoolers and their families.<\/span><\/strong><\/p>\n<p><span class=\"il\" style=\"color: #222222;\"><a href=\"http:\/\/www.slugsandbugs.com\" target=\"_blank\">Slugs and Bugs,<\/a> a<\/span><span style=\"color: #222222;\">\u00a0Christian kids band, will be performing a benefit show at Houston Chinese Church beginning at 7 p.m.<\/span><\/p>\n<p><span style=\"color: #222222;\">The show promises to be fun for the whole family&#8230; and offer the hope of a better future for Justin, Lexi and other kids suffering the effects of GAN.<\/span><\/p>\n<p><br style=\"color: #222222;\" \/><span style=\"color: #222222;\">Tickets are $10 \u00a0and can be purchased at\u00a0<\/span><a style=\"color: #1155cc;\" href=\"http:\/\/www.justinstriumph.org\/events\/\" target=\"_blank\">http:\/\/www.justinstriumph.<wbr \/>org\/events\/<\/a><\/p>\n<p>Of course, donations above the tickets price are also welcome.<\/p>\n<p><strong>Slugs &amp; Bugs to benefit Justin\u2019s TRIumph Over GAN &amp; Hannah\u2019s Hope Fund<\/strong><\/p>\n<ul>\n<li><span style=\"color: #222222;\">When:\u00a0<\/span><span class=\"aBn\" style=\"color: #222222;\" tabindex=\"0\" data-term=\"goog_559743004\"><span class=\"aQJ\">Friday, September 19, 2014<\/span><\/span><\/li>\n<li><span style=\"color: #222222;\">Time:\u00a0<\/span><span class=\"aBn\" style=\"color: #222222;\" tabindex=\"0\" data-term=\"goog_559743005\"><span class=\"aQJ\">7 pm &#8211; 8pm<\/span><\/span><span style=\"color: #222222;\">\u00a0<\/span><\/li>\n<li>Where: Houston Chinese Church (10305 S. Main St., Houston, TX 77025)<\/li>\n<\/ul>\n","protected":false},"excerpt":{"rendered":"<p>Can you imagine what it would be like if your child was suffering from a rare rare, fatal genetic disorder\u00a0and there\u00a0wasn&#8217;t any federal funding to help find a solution? Houston kids Justin and Lexi Clark and their family are facing that battle. Both have been diagnosed with\u00a0Giant Axonal Neuropathy (GAN), which affects\u00a0only 50-70 children worldwide. [&hellip;]<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[436],"tags":[],"class_list":["post-14288","post","type-post","status-publish","format-standard","hentry","category-houston-moms"],"_links":{"self":[{"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/posts\/14288","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/comments?post=14288"}],"version-history":[{"count":4,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/posts\/14288\/revisions"}],"predecessor-version":[{"id":14293,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/posts\/14288\/revisions\/14293"}],"wp:attachment":[{"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/media?parent=14288"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/categories?post=14288"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.momstoolbox.com\/blog\/wp-json\/wp\/v2\/tags?post=14288"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}